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A mum on raising awareness after son's SMA treatment
Charlie, a mum, shares her journey after her son Rupert was diagnosed with Spinal Muscular Atrophy type 1, receiving gene therapy Zolgensma at 11 weeks. She highlights how SMA UK and online communities have raised awareness, offered support, and helped families learn from each other's experiences.
βhttps://www.dailymail.com/video/news/video-3580315/VIDEO-mum-raising-awareness-sons-SMA-treatment.html
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